Patient hub
Overview of patient organisations
We offer an overview of all patient organizations within the respiratory disease domain with the aim of showing the patient the way to support by peers. In this way we also create a strong respiratory patient organization network, where all organizations and patients support and strengthen each other.
Alpha-1 Plus asbl/vzw
Our association bring people together, who have a rare genetic condition: the deficiency of Alpha-1 antitrypsin.
We inform and orientate to find best doctors specialized in lung and liver problems of Alphas.
Website : www.alpha1plus.be
E-mail : [email protected]
Information line: +32 475 69 17 82
Association Belge Francophone contre la Fibrose Pulmonaire (ABFFP) asbl
The ABFFP (Association Belge Francophone contre la Fibrose Pulmonaire) brings together and supports people affected by pulmonary fibrosis and their families.
The association informs, supports, and advocates for patients, while also facilitating communication with healthcare professionals. It also conducts awareness campaigns to raise awareness of the disease and improve the quality of life for those affected.
Website: https://abffp.be/
E-mail: [email protected]
Information line: +32 471 36 25 25
Astma en Allergiekoepel vzw
The Astma en Allergiekoepel vzw is a Dutch-speaking patient association with an information and documentation centre on asthma and allergy.
The Astma en Allergiekoepel vzw has a wide range of high-quality leaflets and brochures, a digital newsletter with recent information and practical tips for daily life written in simple, correct and clearly understandable language. Our digital newsletter and all publications can be obtained via our website, by e-mail or via the information line.
Website: www.astma-en-allergiekoepel.be
E-mail: [email protected]
Information line: +32 800 84 321
BPCO asbl
BPCO asbl is a French-speaking COPD patient association.
Founded by and for patients with COPD and their families, as well as caregivers, the association’s main objective is to raise public awareness of this condition. It aims to inform patients about the latest medical and pharmaceutical advances that can improve their quality of life, provide a space for patients to meet and talk openly about their condition and feelings, provide correct information by making various publications on COPD available, and create a lobbying group that encourages both government officials and the pharmaceutical industry to cooperate.
Website: www.bpco-asbl.be
E-mail: [email protected]
COPD vzw
COPD vzw is an independent Dutch-speaking patient association that brings together people with COPD, their loved ones, and healthcare providers. They are committed to a better quality of life, accessible information, and powerful patient voices in healthcare.
Their work is based on three pillars: 1) Support and peer support — safe meeting places, shared experiences, and practical tips for living with COPD; 2) Reliable information — clearly explained medical and social topics, developed in collaboration with experts; and 3) Advocacy — making patients’ voices heard by researchers, healthcare institutions, and policymakers. We believe in a warm, inclusive community where every patient counts and is heard.
Website: https://copdvzw.be
Email: [email protected]
Information line: +32 470 84 61 19
HALO vzw
HALO vzw is a volunteer organization for and by lung transplant recipients. We support people who are waiting for a lung transplant or who have already undergone one at UZ Leuven.
We provide reliable information in collaboration with the lung transplant team at UZ Leuven. As a volunteer organization, we organize various activities with the aim of providing people with accurate and reliable information and offering them the opportunity for peer support and social activities such as:
– information afternoons
– information stands in hospitals
– outings
– walks
– special celebrations and awareness initiatives
Website: https://halovzw.info
E-mail: [email protected]
Information line: +32 485 76 06 06
Mucovereniging / Association Muco
The Mucovereniging/Association Muco is the Belgian association dedicated to supporting children, young people, and adults with cystic fibrosis.
The Mucovereniging/Association Muco strives for a better and longer life for all people with cystic fibrosis in Belgium through family support, information, advocacy, and support for scientific research.
Website: https://www.muco.be
Email: [email protected]
Information line: +32 2 675 57 69
Prolong vzw
Prolong vzw is a patient organization for people with lung cancer or mesothelioma and their loved ones. Created by and for peers, Prolong vzw focuses on clear information, mutual support and advocacy.
The organization hosts information sessions and thematic cafés, offering a safe space to share reliable information and exchange experiences. Prolong vzw empowers patients and their loved ones throughout their journey and represents their voice to healthcare professionals, researchers and policymakers.
Website: www.prolong.be
E-mail: [email protected]
Pulmonale Hypertensie vzw
Pulmonale Hypertensie vzw (P.H. vzw) is a Belgian patient organisation founded in 2001 by patients with pulmonary hypertension and related issues. Today, P.H. vzw is the central point of contact for pulmonary hypertension between patients, the medical community, government, and the public.
P.H. vzw informs about developments and news regarding pulmonary hypertension, supports with questions and concerns, represents patients and advocates for your interests in national and international associations, supports scientific research on pulmonary hypertension, and raises awareness of pulmonary hypertension among the general public.
Website: https://ph-vzw.be/
E-mail: [email protected]
Information line: +32 472 794 994
Educational tools and materials
With educational tools and materials we support patients in their daily lives. These tools and materials are assessed by a group of experts and patients within our team based on relevance, user-friendliness and scientific correctness.
Patient information guide COPD
This guide was developed by COPDvzw, BPCOasbl, the Belgian Respiratory Society, and the Belgian Lung Foundation with the support of GSK.
This guide offers valuable support and insights for people living with COPD. Discover practical tips and medical information to help you improve your COPD management and lead a full and fulfilling life.
FR version: click here to download!
NL version: click here to download!
How to manage your asthma on a daily basis?
On the occasion of World Asthma Day, an information leaflet for asthma patients on “How to manage your asthma on a daily basis?” existing of 10 tips was developped together with the Belgian Respiratory Society.
The leaflet and a leaflet stand is available to order in Dutch and French.
Please place your orders via [email protected]
Make your home healthier
The Departement Zorg, in collaboration with the medical environmentalists of Gezondheidsmakers, has developed a new brochure for people with sensitive airways or a lung condition. Certain factors in the home can aggravate complaints in people with sensitive airways or a lung condition. Fortunately, there are simple measures that can be taken in the home to alleviate the complaints.
This brochure offers practical, feasible tips in simple language that patients can use themselves to make their home healthier. The tips include preventing moisture, mold and dust mites, avoiding irritants and pets in case of allergies, ensuring good ventilation, etc. The information is relevant for people with various respiratory conditions, such as asthma, COPD and allergies. Although the brochure does not replace medical treatment, it can help to reduce symptoms.
Please note: the brochure is only available in Dutch.
Patient expert
We support patient organizations by training patients to become patient experts in their own disease domain. The professionalization of the patient strengthens the functioning of patient organizations and improves the advocacy of the patient within various social domains.
This section is currently under construction.
Grants for patient organisations
We support patient organizations by awarding grants to support and improve their operations, and by organizing campaigns or events to raise awareness of respiratory health.
This section is currently under construction.